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Author: National Organization for Rare Disorders (NORD)

NORD Advances Policy Leadership with Strategic Appointments to Strengthen Rare Disease Advocacy

March 25, 2026
National Organization for Rare Disorders and OpenEvidence Partner to Bring AI-Powered Rare Disease Resources to Clinicians and Patients Worldwide

March 12, 2026
Earn Your Stripes: NORD Launches Rare Disease Day® CME Challenge to Close Critical Gaps in Rare Disease Education

February 23, 2026
National Organization for Rare Disorders Ranks All 50 States on Rare Disease Policies

February 12, 2026
NIH Director Dr. Jay Bhattacharya to Headline Second Annual NORD® Rare Disease Scientific Symposium Focused on Accelerating Innovation

February 11, 2026
NORD Extends Exclusive CME Partnership with Medlive

January 6, 2026
Public Affairs and Patient Advocacy Leader Kim Isenberg Joins National Organization for Rare Disorders Board of Directors

December 8, 2025
National Organization for Rare Disorders Adds Seven Rare Disease Centers of Excellence Nationwide

December 4, 2025
NORD Launches New RFP for Patient Registries

November 17, 2025
NORD Unveils IAMRARE Mobile App Companion to IAMRARE Registry Platform

October 29, 2025